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I am Elliott and Robbie's mother. I started this blog as a way to help me deal and hopefully others deal with genetic disorders. My oldest son, Elliott, has recently been diagnosed with Floating Harbor Syndrome, Microchephaly, and potentially other medical conditions that are currently being tested for. My youngest son, Robbie, potentially has Floating Harbor Syndrome. We are awaiting further testing. So I decided that there must be other people out there that have FHS or other genetic disorders. In order to reach those people and to offer safe place to discuss current issues with family, marriage, and/or medical concerns I decided to start this blog. I hope that wh0mever reads this becomes enlightened and educated in the world of genetic disorders. It is a true test of human nature in regards to how they treat, handle, and understand people who are different.

Elliott's 1st grade picture

Elliott's 1st grade picture
"Cheese"

Elliott's birthday

Elliott's birthday
Day 2..slowly but surely I'm getting better!

Brotherly Love

Brotherly Love
I love you!

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Saturday, April 3, 2010

Conflicted...

I find myself conflicted lately. I love my boys and would not trade them for anything in the world, but I find myself worrying what type of future is in store for them. I love them with all my heart and will do anything for them, however, as with every other middle class family in America there are financial and time constraints. Will they be able to make a living? Have a family? Children? Will they learn to love each other and always be there for each other? If something was to happen to me would they know that I loved them deeply? It is hard for me to imagine not being their in my children's lives but lately I wonder how long I am going to be able to participate in it. I am in the age bracket of when colon cancer strikes my family. Yes, I do get check ups for that, but it all depends on the doctor. Did he take his time and thoroughly analyze everything? Only he would know but my life rests in his hands. Will my children have to live in fear of this, as well? How do you go about explaining it to them? I feel that much is on my mind and none of it is answerable. Only time will tell, until them I plan on loving them and cherishing every moment with them and hopefully getting some sleep at night (lord knows I could use it).

1 comment:

  1. My darling daugghter,I want you to know that your father and I are with you and the boys. I do not know how to help you except by letting you know we are with you in these hours of torment. There is a way through this and we will help you find it. With love, Mom.

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